CLIFTON PARK, N.Y. -- Earlier this year a little girl in Clifton Park was diagnosed with an extremely rare genetic disorder that permanently damages her nerve cells.

Four-year-old Hannah Sames is now the focus of much needed research which is costly but doctors continue to make major breakthroughs. That can help many other genetic disorders as well.

Her mother Lori Sames talked to us about what we can do to help.

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