Updated 10/07/2012 08:01 PM
Baby Jax returns home
A Fulton County baby fighting for his life all the way in Minnesota is back home. YNN's Maria Valvanis has more on Baby Jax, and his prognosis after undergoing an extremely risky procedure.
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JOHNSTOWN, N.Y. -- Jackson's mother, Jessica Valik, said, "The idea was to bring him as close to death as possible, and give him the transplant, and then just pray, pray that he'll do good."
Jackson Baldwin, 1, or baby Jax as he is affectionately called, will go down in history as the youngest person to undergo a bone marrow transplant to treat Epidermolysis Bullosa, and survive.
"When we left here, I didn't know if we were going to come back, if I was going to have Jackson with me or not," Valik explained.
The more than $1 million medicaid funded procedure was risky, but Baby Jax's chances of survival without it, were low. E.B., an extremely rare skin disease, left him sick, in pain, and his skin covered in blisters and bandages.
"For him to come back like this and see his skin, and to play with him like this and have him hold on to rough things, it's really good," said Samantha, Jackson's aunt.
"Now he's walking, he's talking, he's being a normal baby," said Valik.
And while Baby Jax was away, supporters back home continued with their fundraising efforts, now having raised more than $50,000.
"I'm grateful for the support, that alone, I truly think is what got us through everything," noted Valik.
But in order to keep going, Jackson still needs help. Just one of his 32 daily medications costs upwards of $1,000 per month, and he'll need to make multiple trips back to Minnesota for follow up care.
"Jackson just stole the hearts of many people. Little things like that just meant the world to me and that's what kept us going."
To help with the fundraising, you can head to savejax.wordpress.com or helpjackson.org..